Family life · Uncategorized

When you’ve hit the bottom.

That day, 12th November 2016, is a day that was so raw, so poignant, so surreal, an out of body experience, yet so very real and painful. As little Elijah took his final breath in my arms, I too thought I might never breathe again.  Truth be told I don’t think I’ve breathed the same… Continue reading When you’ve hit the bottom.

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Mothers Day 2017

We can build things up in our head can’t we? And then, when the ‘event’ actually happens, sometimes, it’s not quite what we thought it was going to be. Sometimes it’s much worse than we thought, sometimes it’s better. That was Mother’s Day this year for me. I was dreading it.  The whole week leading… Continue reading Mothers Day 2017

Family life · Uncategorized

No sadness like it.

Those last 6 days were a mix of both the happiest and the saddest days I have ever experienced.  I wish I could show you videos from the Sunday afternoon here at home – he was LOVING life with his siblings.  They sang with him, read him stories, played with him, danced with him and… Continue reading No sadness like it.

Family life · Uncategorized

Live for today.

Whilst PICU was hell, and I mean hell, there was undoubtedly purpose in it. It was a significant part of both ours and Elijah’s journey.  There were days when I was completely and utterly broken.  But it was on PICU that I realised every single day we have here, on this earth is a gift.… Continue reading Live for today.

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The Lord will fight for you; you need only to be still.

Life in PICU was hard. We had no diagnosis for Elijah, all we knew for sure was that he had a serious heart condition. Consultants felt strongly that there was a serious underlying condition that had caused his heart to become damaged.  And whilst, I completely respect the job that they do, it is extremely hard… Continue reading The Lord will fight for you; you need only to be still.

Family life · Uncategorized

Disappointment.

But then, on 29th August our world came crashing down around us, and what followed was 3 weeks of hell. Torture. Complete despair. Heartache like I have never known. Instead of bringing our wee man home, Elijah ended up in PICU that afternoon and was the most fragile little one in The Royal Victoria Hospital. I actually… Continue reading Disappointment.

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Feeling determined.

As I said in the previous post we began to entertain the idea of getting our wee man home. And I have to admit I was so ready for this. My patience was definitely wearing thin, there were days it was all I could do to get out of bed and head down that M1… Continue reading Feeling determined.