That day, 12th November 2016, is a day that was so raw, so poignant, so surreal, an out of body experience, yet so very real and painful. As little Elijah took his final breath in my arms, I too thought I might never breathe again. Truth be told I don’t think I’ve breathed the same… Continue reading When you’ve hit the bottom.
Those last 6 days were a mix of both the happiest and the saddest days I have ever experienced. I wish I could show you videos from the Sunday afternoon here at home – he was LOVING life with his siblings. They sang with him, read him stories, played with him, danced with him and… Continue reading No sadness like it.
Whilst PICU was hell, and I mean hell, there was undoubtedly purpose in it. It was a significant part of both ours and Elijah’s journey. There were days when I was completely and utterly broken. But it was on PICU that I realised every single day we have here, on this earth is a gift.… Continue reading Live for today.
But then, on 29th August our world came crashing down around us, and what followed was 3 weeks of hell. Torture. Complete despair. Heartache like I have never known. Instead of bringing our wee man home, Elijah ended up in PICU that afternoon and was the most fragile little one in The Royal Victoria Hospital. I actually… Continue reading Disappointment.
And so August continued with those ups and downs. As friends and family and people we didn’t even know prayed and fasted we saw God move in remarkable ways. Results came back to say he didn’t have this and he didn’t have that. When they thought there were problems with his brain, then his kidneys,… Continue reading Did someone say home?
We didn’t know that day just how important that little ward would become to us. It became a second home, a little haven; the nurses became our good friends, the Sisters like mothers, the cleaner knew what way I took my coffee, the doctors felt like school mates, and the cardiac consultants like grandpas. What… Continue reading ‘I get knocked down, but I get up again, you’re never gonna keep me down!” 🎶
That Sunday night was a game changer – life changer really. I, again, lost all control. My heart was racing, aching. My thoughts spiralling out of control as I thought about how we would have to rent a holiday home over in England for the summer – the consultant had said he didn’t know how… Continue reading He’s got this!